Viewpoint: My First WHO Executive Board

by Annie Bliss, ADI Communications and Policy Officer

ADI’s Communications and Policy Officer, Annie Bliss, at the WHO Exec Board in Geneva

On 24 January 2019, wrapped up in Winter wear, I touched down on Swiss soil for my first World Health Organization (WHO) Executive Board meeting. My first observation: “Wow, Geneva really is a functional and miniature city!” After a smooth bus journey to the WHO building (or as it’s locally known, OMS), I was met by the hustle and bustle of side meetings and coffee runs. ADI’s mission was to ensure that the profile and priority of dementia remained high, with key statements planned under Non-communicable diseases (NCD) and Universal Health Coverage (UHC). I was also aware from discussions with colleagues of the successful advocacy efforts of ADI and its members at the last Executive Board to ensure that dementia was specifically identified in the 13th General Programme of Work.

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Let’s Talk About Dementia Research: Your Questions Answered

In November last year, ADI held the first in a series of global webinars: Let’s Talk About Dementia Research: Demystifying Trials, Access and Understanding.

We created the series to provide a unique opportunity for the public and Alzheimer and dementia associations to engage directly with health and social care professionals, as well as companies involved in dementia research.

As far as we know, no other webinar has provided such ‘public to professional’ access before.

We heard from the pharmaceutical industry, researchers and clinicians conducting research and clinical trials, as well as primary care health professionals supporting patients and families. Most importantly, we heard stories of people living with dementia and their care partners about their lived experience. 

During the webinar, we invited participants to ask our panel their most pressing questions. Whilst we were able to cover many of these topics live, in the lead up to our second webinar: Let’s Talk About Dementia Research: Global Barriers and Access to Trials, we wanted to respond to some of your unanswered questions.

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Islamic values in dementia care with Dr Heriawan and Amalia Fonk-Utomo

Dr Heriawan, Amalia Fonk-Utomo and DY Suharya at WISH Qatar 2018

On 12 November 2018, ADI facilitated a seminar on Islamic values in dementia care at the World Innovation Summit for Health (WISH) 2018 in Doha, Qatar. ADI’s Asia Pacific Regional Director DY Suharya invited geriatrician Dr Heriawan and Amalia Fonk-Utomo, Chairperson for Stichting Alzheimer Indonesia Nederland, to present. It was a wonderful opportunity for us to spread global best practice in dementia care with a local relevance. In this blog, Dr Heriawan and Amalia share their thoughts on hosting this insightful seminar.

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Dr Jennifer Bute: A Journey of Hope

On World Alzheimer’s Day 2018, ADI released the World Alzheimer Report 2018: The state of the art of dementia research: New frontiers, addressing key questions in dementia research, relating to: basic science, diagnosis, drug discovery, risk reduction, epidemiology and care. Dr Jennifer Bute, a former General Practitioner (GP) who was diagnosed with dementia, is one of the contributors to this year’s report. Here is her story in her own words. Continue reading “Dr Jennifer Bute: A Journey of Hope”

Howard Gordon shares his experiences of early onset dementia and offers advice during World Alzheimer’s Month

Howard Gordon, member of Dementia Alliance International, Action Group

I started to notice changes around the beginning of 2014. I was working at the local Hospital and I began to forget regular tasks. I would go to the clinic room or kitchen and forget what I went there for. Knowing the time, day and date became an issue and I was getting lost around the Hospital. I began to get lost in other familiar places and would cross roads without looking or noticing until I had got to the other side.

Although I had received Dementia training and experience caring for people living with Dementia for 15 years, I put it down to turning 50 and it wasn’t until I saw a television programme about Chris Roberts, who himself was diagnosed with dementia at 50, that alarm bells rang and I went to my GP (general doctor). Continue reading “Howard Gordon shares his experiences of early onset dementia and offers advice during World Alzheimer’s Month”

“Progress can only happen when there is close collaboration”: ADI at the 71st World Health Assembly

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On 23 May 2018, Alzheimer’s Disease International brought together government delegates, civil society, students and importantly, people living with dementia and carers, in the Palais des Nations in Geneva, for our official side-event to the 71st World Health Assembly (WHA71).

Mobilising Society: Inspiration for national responses to dementia was a particularly significant event for dementia advocacy and the advancement of dementia on the global agenda, as it was the only event at the WHA this year dedicated to highlighting dementia as a global health challenge. It also marked two important occasions: first year anniversary of WHO’s Global action plan on the public health to dementia 2017-2025, and of ADI’s new report: From plan to impact: Progress towards targets of the Global plan on dementia 2017-2025. Continue reading ““Progress can only happen when there is close collaboration”: ADI at the 71st World Health Assembly”